Changing the Narrative of Cystic Fibrosis
There was once a time where cystic fibrosis, or CF, was considered a terminal disease. While this may have been the case years ago, patients diagnosed with CF…
Cystic fibrosis - resources
Alternative Names
Resources - cystic fibrosis
Information
The following organizations are good resources for information on cystic fibrosis:
- Centers for Disease Control and Prevention -- www.cdc.gov/genomics/disease/cystic_fibrosis.htm
- Cystic Fibrosis Foundation -- www.cff.org
- Genetic and Rare Diseases Information Center -- rarediseases.info.nih.gov/diseases/6233/cystic-fibrosis
- March of Dimes -- www.marchofdimes.org/find-support/topics/planning-baby/cystic-fibrosis-and-your-baby
- National Heart, Lung, and Blood Institute -- www.nhlbi.nih.gov/health-topics/cystic-fibrosis
- US National Library of Medicine, Medline Plus -- medlineplus.gov/cysticfibrosis.html
Related specialties
Our experts
Community and Patient Programs: Cystic fibrosis - resources
Our community and patient programs provide great value to patients, families and loved ones. People can find support, educational materials, expert consultants and more. In most instances, these programs are offered free of charge.
-
Streetlight
Peer companionship for adolescents and young adults living with serious illness.
News and Patient Stories: Cystic fibrosis - resources
Drug for cystic fibrosis patients associated with higher hospitalization risk
April 23, 2018
Long-term use of a class of drugs that suppress stomach acid is associated with an increased risk of hospitalization for cystic fibrosis patients, who are…
College of Medicine, +2 more
